درجة مساهمة الضغوط الوالدية بالتنبؤ بالحاجة المدركة للدعم الاجتماعي لدى أمهات الأطفال ذوي اضطراب طيف التوحد في الأردن

محمد مهيـــــدات, قيــس المقداد

Abstract


هدفت الدارسة الحالية التحقق من درجة مساهمة الضغوط الوالدية بالتنبؤ بالحاجة المدركة للدعم الاجتماعي لدى أمهات الأطفال ذوي اضطراب طيف التوحد في الأردن، والكشف عن أثر المتغيرات الديموغرافية والقدرة التنبؤية للضغوط الوالدية بالحاجة المدركة للدعم الاجتماعي لديهن. شاركت في هذه الدراسة (82) من أمهات الأطفال الملتحقين في مراكز التوحد تم اختيارهن بالطريقة المتيسرة. واستخدم الباحثان مقياس الضغوط الوالدية لبيري وجونز ((1995 والصورة المعدلة من مقياس الحاجة المدركة للدعم الاجتماعي المعدل لسيكلوس وكيرنز (2006) بعد التحقق من دلالات صدقهما وثباتهما. وأشارت النتائج أن كلاً من مستوى الضغوط الوالدية ومستوى الحاجة المدركة للدعم الاجتماعي كانا مرتفعين لدى الأمهات، وأظهرت النتائج فروقا دالة إحصائياً بين أوساطهما الحسابية تبعاً لمتغير العمر ولصالح الأمهات ذوات الفئة العمرية (40) سنة فأكثر، في حين لم تظهر فروقا دالة إحصائياً بين أوساطهما الحسابية تبعاً إلى الحالة الاجتماعية والمستوى التعليمي والدخل الشهري. كما دلت النتائج وجود فروق دالة إحصائياً بين الوسطين الحسابيين لبعد الحاجة المدركة للدعم الاجتماعي المرتبط بالأسرة لدى الأمهات تبعا للحالة الاجتماعية لصالح الأمهات الأرامل أو المطلقات، وبين الوسطين الحسابيين لأبعاد الاحتياجات التعليمية لولي الأمر، والحاجات الطبية للأسرة والخدمات الاجتماعية والتواصل الاجتماعي للطفل تبعاً لمتغير العمر ولصالح الأمهات الأكبر سناً، وبينت النتائج أنه كلما زادت الضغوط الوالدية زادت الحاجة المدركة للدعم الاجتماعي لدى الأمهات المشاركات. وقد أوصت الدراسة بضرورة التحقق من هذه المساهمة في ضوء شدة اضطراب طيف التوحد لدى الطفل وعمره وارتباطه بمقدار الدعم الاجتماعي المتوفر ونوعية ومقدار التدخل العلاجي في برنامج الطفل، ومشكلات الطفل السلوكية.
The Degree of the Contribution of Parental Stress in Predicting the Perceived Need for Social Support among Mothers of Children with Autism Spectrum Disorder in Jordan

Abstract
The study aims at investigating the degree the degree of the contribution of parental stress in predicting the perceived need for social support among mothers of children with autism spectrum disorder (ASD) in Jordan and revealing the impact of demographic variables and the predictive ability of parental stress on the perceived need for social support among them. A total of 82 mothers of children with ASD attending autism centers were selected conveniently. The researchers used both the Perry and Jones’ Parental Stress Scale (1995) and the modified version of Siklos and Kerns’ Perceived Social Support Scale (2006) after testing their validity and reliability. The results indicated that parental stress and perceived social support levels among mothers were high, and showed statistically significant differences between their arithmetic mean according to the variable of age and in favor of mothers of the age group (40) years and over. and statistically different according to age for those of (40) years and above, while there were no statistically significant differences according to social status, educational level and monthly income. The results indicated statistically significant differences in the perceived need of family-related social support means due to the marital status in favor of widowed or divorced mothers, and in the means of parents educational needs, family medical needs, social services and the child social interaction according to age of mothers in favor of the older age group. The results showed that when parental stress increases, perceived needs of social support increase among participant mothers. The study recommended that this contribution should be verified in light of the severity of disorder, the age of the child, its association with the amount of available social support, the quality and amount of therapeutic intervention in the program of the child, and the child behavioral problems.

Keywords


الضغوط الوالدية، الحاجة المدركة للدعم الاجتماعي، اضطراب طيف التوحد، الأردن. Parental Stress, Perceived Social Support, Autism Spectrum Disorder (ASD), Jordan

References


References:

Abbeduto, L., Seltzer, M., Shattuck, P., Krauss, M., Orsmond, G. & Murphy, M. (2004). Psychological well-being and coping in mothers of youths with autism, down syndrome, orfragile X syndrome. American Journal on Mental Retardation, 109(3), 237-254.‏

Abu-Hamour, B. & Muhaidat, M. (2014). Parents' attitudes towards inclusion of students with autism in Jordan. International Journal of Inclusive Education, 18(6), 567-579.‏

Allen, K., Bowles, T. & Weber, L. (2013). Mothers' and Fathers' Stress Associated with Parenting a Child with Autism Spectrum Disorder. Autism Insights, (5).‏

Al-Khalaf, A. & Dally, K. (2014). The effect of an education program for mothers of children with autism Spectrum disorder in Jordan. International Journal for the Advancement of Counselling, 36(2), 175–187.

American Psychiatric Association (2013). Diagnostic and Statistical Manual of Mental Disorders: (DSM-V), 5th Edn. Arlington, VA: American Psychiatric Publishing; 10.1176/appi.books.9780890425596

Sim, A., Vaz, S., Cordier, R., Joosten, A., Parsons, D., Smith, C. & Falkmer, T. (2018). Factors associated with stress in families of children with autism spectrum disorder. Developmental Neurorehabilitation,21(3), 155-165

Bakér-Ericzen, M., Brookman-Frazee, L. & Stahmer, L. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research & Practice for Persons with Severe Disabilities, 30, 4, 194-204

Batool,S. Sh & Khurshid, S.(2015).Factors Associated with Stress A mong Parents of Children with Autism, Journal of the College of Physicans and Surgeons Pakistan, 25(10), 752-756

Benson, P. & Karlof, K.(2009)Anger, stress proliferation, and depressed mood among parents of children with ASD: a longitudinal replication. J Autism Dev Disord . 39(2):350-62.

Bishop, S., Richler, J., Cain, A., Lord, C. (2007). Predictors of perceived negative impact in mothers of children with autism spectrum disorder. American Journal on Mental Retardation, 112 (6), 450-461.

Bitsika, V. & Sharpley, C. (2017). The association between autism spectrum disorder symptoms in high-functioning male adolescents and their mothers’ anxiety and depression. Journal of Developmental and Physical Disabilities, 29(3), 461-473.‏

Boyd, B. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on autism and other developmental disabilities, 17(4), 208-215.‏

Charman, T. & Baird, G. (2002). Practitioner review: Diagnosis of autism spectrum disorder in 2- and 3-year-old children. Journal of Child Psychology and Psychiatry, 43 ( 3), 289–305.

Clifford, T. (2011). Support groups for parents of children with autism spectrum disorders: Predictors and effects of involvement (Doctoral dissertation).‏

Davis, N. & Carter, A. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, (38), 1278–1291.

Dunn, M., Burbine, T., Bowers, C. & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39-52

Eisenhower, A., Baker, B. & Blacher, J. (2005). Preschool children with intellectual disability: syndrome specificity, behaviour problems, and maternal well‐being. Journal of intellectual disability research, 49(9), 657-671.‏

Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X. & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375-387.‏

Goin-Kochel, R., Mackintosh, V. & Myers, B. (2006). How many doctors does it take to make an autism spectrum diagnosis?. Autism, 10(5), 439-451.‏

Haisley, L. (2014). Parenting stress in parents of young children with autism spectrum disorders: The role of child characteristics and social support.‏

Hartley, S. & Schultz, H. (2015). Support needs of fathers and mothers of children and adolescents with autism spectrum disorder. Journal of autism and developmental disorders, 45(6), 1636-1648.‏

Hayes, S. & Watson, S. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of autism and developmental disorders, 43(3), 629-642.‏

Hsiao, Y. (2018). Autism Spectrum Disorders: Family Demographics, Parental Stress, and Family Quality of Life. Journal of Policy and Practice Disabilities, 15 (1), 70-79

Johnston, L. & Sabin, K. (2010). Sampling hard-to-reach populations with respondent driven sampling. Methodological innovations online, 5(2), 38-48.‏

Kamei, A. (2013). Perceptions and Experiences of Mothers who have Children with Autism Spectrum Disorders: Cross-Cultural Studies from the US and Japan. DAI, the University of North Carolina at Greensboro

Kiami, S. & Goodgold, S. (2017). Support needs and coping strategies as predictors of stress level among mothers of children with autism spectrum disorder. Autism research and treatment.‏

Lindsey, R. & Barry, T. (2018). Protective factors against distress for caregivers of a child with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(4), 1092-1107.‏

Lee, G. (2009). Parents of children with high functioning autism: How well do they cope and adjust? Journal of developmental and physical disabilities, 21(2), 93-114.‏

Meral, B. & Cavkaytar, A. (2012). A Study On Social Support Perception Of Parents Who Have Children With Autism. International Journal on New Trends in Education & Their Implications (IJONTE), 3(3).‏

Miranda, A., Mira, A., Berenguer, C., Rosello, B., & Baixauli, I. (2019). Parenting stress in mothers of children with autism without intellectual disability. Mediation of behavioral problems and coping strategies. Frontiers in psychology, 10, 464.‏

McStay, R., Trembath, D. & Dissanayake, C. (2014). Maternal stress and family quality of life in response to raising a child with autism: From preschool to adolescence. Research in developmental disabilities, 35(11), 3119-3130.‏

Mohammed, Q. (2015). Psychological distress in parents of autistic children in Baghdad city. nursing national Iraqi specility, 28(1), 55-64.‏

Moldin, S., & Rubenstein, J. (Eds.). (2006). Understanding autism: from basic neuroscience to treatment. CRC press.‏

Mostafa, M. (2019). Stress and Coping Strategies among Parents of Children with Autism Spectrum Disorder. PEOPLE: International Journal of Social Sciences, 5(1), 17-29

Omar, T., Ahmed, W. & Basiouny, N. (2017). Challenges and adjustments of mothers having children with autism. Alexandria Journal of Pediatrics, 30(3), 120.‏

Osborne, L., McHugh, L., Saunders, J. & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of autism and developmental disorders, 38(6), 1092.‏

Osborne, L. & Reed, P. (2008). Parents' perceptions of communication with professionals during the diagnosis of autism. Autism, 12(3), 309-324.‏

Peck, J. (2012). Parents' and practitioners' perceptions of supports, interventions, and the home visiting process used in early intervention. DAI, Iowa State University, Ames, Iowa

Berry, J. & Jones, W. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12(3), 463-472.‏

Pisula, E. (2011 ). Parenting Stress in Mothers and Fathers of Children with Autism Spectrum Disorders. A Comprehensive Book on Autism Spectrum Disorders, University of Warsaw, Poland.

Plumb, J. (2011). The Impact of social support and family resilience on parental stress in family with a child diagnosed with an autism spectrum disorder. DAI, University of Pennsylvania.

Pozo, P. & Sarria, E. (2014). A global model of stress in parents of individuals with autism spectrum disorders (ASD). anales de psicología, 30(1), 180-191

Pozo, P., Sarria, E. & Brioso, A. (2011 ). Psychological Adaptation in Parents of Children with Autism Spectrum Disorders. A Comprehensive Book on Autism Spectrum Disorders, Spain.

Prata, J., Lawson, N., & Coelho, R. (2019). Stress factors in parents of children on the autism spectrum: An integrative model approach. International Journal of Clinical Neurosciences and Mental Health, 6(2).‏

Rao, P. & Beidel, D. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior modification, 33(4), 437-451.‏

Rayan, A. & Ahmad, M. (2017). Psychological distress in Jordanian parents of children with autism spectrum disorder: The role of positive reappraisal coping. Archives of Psychiatric Nursing, 31(1), 38-42.‏

Sa’dawi, N. (1980). The hidden face of Eve: women in the Arab world. Londan: Zed Press.

Siklos, S. & Kerns, K. (2006). Assessing need for social support in parents of children with autism and Down syndrome. Journal of autism and developmental disorders, 36(7), 921-933.‏

Sim, A., Vaz, S., Cordier, R., Joosten, A., Parsons, D., Smith, C., & Falkmer, T. (2018). Factors associated with stress in families of children with autism spectrum disorder. Developmental neurorehabilitation, 21(3), 155-165.‏

Stanojević, N., Nenadović, V., Fatić, S., & Stokić, M. (2017). Exploring factors of stress level in parents of children with autistic spectrum disorder. Specijalna edukacija i rehabilitacija, 16(4), 445-463.‏

Storms, N. (2012). Stress and coping strategies used by parents when raising a young child with an autism spectrum disorder. DAI, Southern Illinois University Carbondale

Sagar, J. (2015). The relationship between stress and social support among parents of children with Autism Spectrum Disorders (ASD). Indian Journal of Psychiatric Nursing, 9(1), 1.‏

Tait, K. & Mundia, L. (2012). The Impact of a child with autism on the bruneian family system. International Journal of special education, 27(3), 12-23.

Weiss, M. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6(1), 115-130.‏

Webster, R., Majnemer, A., Platt, R. & Shevell, M. (2008). Child health and parental stress in school-age children with a preschool diagnosis of developmental delay. Journal of child neurology, 23(1), 32-38.‏

Worcester, J., Nesman, T., Mendez, L. & Keller, H. (2008). Giving voice to parents of young children with challenging behavior. Exceptional Children, 74(4), 509-525.‏

Wolf, R. (2009). Social support domains for parents of children with Autism spectrum disorder: Assessing perceived needs and stress levels. DAI, Western Kentucky University, Bowling Green, Kentucky.




DOI: http://dx.doi.org/10.35682/1837

Published by
MUTAH UNIVERSITY